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Publication Article

The Mother’s Bond

My son Alex suffers from hydrocephalus, an uncommon condition that forces an abnormal accumulation of fluid inside his brain. His condition is treated with insertions of…

Publication Article

Is Overreliance on Technical Standards Undermining Efforts to Use IT to Transform the U.S. Health System?

Considers whether efforts on technology standards absent alignment of policy objectives and financial incentives is “magical thinking” and reports that the nation’s health IT coordinator…

Publication Article

Health Information Exchange: ‘Lex Parsimoniae’

Article covers the health information exchange (HIE) it’s details and how it will change America should it be fully integrated – by creating a consistent…

Publication Article

Achieving Electronic Connectivity in Health Care: Summary of Financial Incentives Recommendations

Findings:  Financial incentives need to be realigned to promote quality care improvement via IT adoption, connectivity, and information exchange among all health care providers. Financial incentives of…

Publication Article

Model Sub-Network Organization Terms and Conditions: Topic List

Model Sub-Network Organization Terms and Conditions Topic List Introduction: This document (“Topic List”) describes the issues addressed by the Model Terms and Conditions of a…

Publication Article

Response to New Federal Health Data Breach Notification Requirements

Markle, the Center for Democracy and Technology, and others comment on the new federal health data breach notification provisions to be administered by the US…

Publication Article

Objective Standards Needed for Evaluating Information Breaches

Markle’s Connecting for Health Initiative has since 2002 brought together leading government, industry, and health care experts to accelerate the development of a health information-sharing…

Publication Article

Policy Should Come Before Standards for Consumer Consent Preferences

We urge HHS not to pursue a one-size-fits-all use case or technical approach to the issue of consent in advance of policy objectives and requirements….

Publication Article

Building Trusted Information-Sharing Environments for National Security and Health Care

There are few matters more important to the future of our government and American society than the challenge we are grappling with today. Advances in…

Publication Article

Models for Data Storage & Exchange, Aggregate Data, De‐identification and Re‐identification

In this testimony, Claudia Williams addresses this goal of maintaining public trust by making privacy a critical enabler of information sharing and health IT adoption, and…

Publication Article

Implementing a Trusted Health Information Exchange

Keynote speech, which discusses Markle’s mission, programs, and values, the context of the current US health care, the disruptive power of information technology, Connecting for…

Publication Article

Comments on FTC Breach Notification Rulemaking

Section 13407 of the American Recovery and Reinvestment Act of 2009 (ARRA)1 establishes temporary breach notification requirements for vendors of personal health records (PHRs)2 and other entities…